2nd Infusion Done!

I had my second infusion today.  Up at 6.30am, drove over to Mom who then took me into hospital by 8.15am and thankfully, this time, I was fortunate that there was one 'bed' which I quietly laid down on, whilst being so grateful my appointment was for 8.30am.   Will come back to the first infusion when I feel ready to post.  There were 4 of us in today (3 Rheumatoid and me!) arriving at different times throughout the morning.

Cannula in, IV steroids infused,  big 'ole antihistamine dose in and then Rituximab (Truxima) infused.   SJC son arrived around at 2.10pm and infusion finished at 2.15pm.  Perfect timing.  Cannula out and SJC drove me home, then sleeping for a further 3 hours.  I cannot tell you how good it was to be home.

Still experiencing headaches from hell and awaiting MRI brain scan. Soon I hope.  Also awaiting hand surgeries but can't do that soon due to the risk of infection with immune system so compromised.

Now the biologic is micely racing around my body like a hamster in its running wheel.  šŸ­  I need to be a patient patient and hope that it will work. It has to.

I did so much want to do a running commentary for other Rituximab patients but have found it difficult for the last 3 weeks.  I'll be out of it for a few days but then I hope to continue and be informative for those who may wish to consider their medical options, who may not realise, like I,  that there ARE other options to DMARDS and steroid use, especially those suffering with Lupus in particular.

If any SLE person believes they could be in a similar position to my many autoimmune diseases, where they think they have run out of options and find it difficult to live like this, well, I would like to encourage them to challenge their treatment plan, challenge their consultant, challenge their PCT for options and medications that could, maybe even should, have been made available many years ago!!!!   (Had to put that in so I remember). 

See, those last statements, make writing difficult right now but I know that's because I'm not feeling too good; I have brain fog (as my nearest and dearest know and understand) and know the next few days will not be too much fun. I need to clear that out of mind as soon as I can.  

Thank you Mom and SJC and for being able to take me to and from hospital (as I'm unable to drive on the day of treatment). Also, thank you to my chap for his unwavering support and massively positive outlook to the future; his spirit and love held me close from distant shores and give me strength... and thank you to friends and family who have supported me over the years.

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